Monday, August 12, 2019

To everything, there is a season....


In the mornings, before work, and before my little guy is up for the day, I sit outside on my and drink my coffee. It’s usually the only quiet moments I get until Mitchell is down for the night. There’s something about peace and quiet with hot coffee, even in the summer, that just feels right. My dog Bella, roams around the yard and takes off after rodents, occasionally a car will head down the drive way, presumably for work, and maybe a bird will chirp; other than that the only noise that I hear over and over again, is the acorns bouncing off my car. 
We park our cars in a row that begins in front of our porch, my car, my husbands truck, and then his work truck. Between my car, and his truck is a big old oak tree, when the cars are moved, my son is able to swing high in his infant swing that hangs from the limb. 
Every summer I sit out there and listen to the acorns dropping. 

It starts at the end of July, and goes through September. 

When the acorns fall, it is my season. My season of grief. 

At Leeona’s funeral, my aunt read scripture from Ecclesiastes; 

To every thing there is a season, and a time to every purpose under the heaven: A time to be born, and a time to die; a time to plant, and a time to pluck up that which planted; a time to kill, and a time to heal; a time to break down, and a time to build up; A time to weep, and a time to laugh; a time to mourn, and a time to dance.

This is my season of grief and of mourning. 

It’s weird, how something similar can bring you back, my body remember  things that I didn’t know I remembered. It’s the heat somedays, crisp, no moisture sun on your face kind of heat, that I remember at the funeral. I couldn’t bring myself to take off my cardigan, I couldn’t bring myself to strip off that bit of color and be left wearing black. The breeze was enough, to allow me to keep it on. The sound of the acorns falling, the sound of my cousins voice belting out “Amazing Grace” only cracking occasionally when her grief took over for moments. I remember the sound of feet crunching the dry over growth on the ground beneath us, and the sound of a dragonfly wizzing by my head. 

So I sit on my porch, and I listen to the sound of acorns falling and with every ping, off the top of my car, I miss my daughter. I wonder who she would be and where life would take us, and what her voice would sound like. I wonder what would make me think of her, I wonder what smells, and sounds, and moments should make me remember her. How different this list would be if she had survived. 
Theres this weird thing that happens when you grieve. Its like everyone in the world is “there for you” and they understand, and they want to help in whatever way they can, and then all of a sudden, their lives move on, and you are left there still struggling to keep your head above water. All of a sudden they have climbed into a speed boat, thrown you a life preserver and sped off into the sunset. You are bobbing there, trying to breathe trying not to drown. Like they have forgotten that you’re still learning to swim.  
I’ve gotten good at floating, I think I have learned to swim, but there are still times that I need a boat. I think that if I had never been given the gift of being Mitchells mother; I would have drown already. 

Remember when you see people who have faced a significant loss, that their pain goes with then everywhere they go. It doesn’t just stop once everyone has sped off. Remember that they will go through seasons, seasons of happiness, and love, and loss, and grief, it will come back and slap them in the face, sometimes even when they aren’t expecting it. 

I feel my daughter more, during this calendar season, than usual. I face more pain, and more guilt, more emotions during this time of year, because im always left with the “what ifs” 

I don’t really have a point to this post. I don’t have some kind of story to tell you, or a revelation that I’ve come to. I guess, I’m just asking, to forgive me if I’m distant, forgive me if I’m rude. 
Be gentle with me. 
I’m in my season. 

Friday, June 7, 2019

Being thankful for a scraped knee.

I needed my son to scrape his knee today. 
You see, my son has pushed me to my limits this week. He hasn’t been sleeping; he’s been wild and all boy, and screaming his lungs off every time he wants attention.  Ive always been incredibly grateful for him, and have been feeling guilty about how irritated I’ve been with him lately. No sleep will do that to you.
Today, we played all morning. He napped when he decided he wanted a nap, I let him run the schedule.  We played in the yard, in his little blue truck, and Sometime during that he decided he wanted his Dada. So he wobbles and runs up the drive way towards our garage, and once he made it to the tar, he fell. 
Insert scraped knee. 
It wasn’t until I sat him on my counter and cleaned up his leg, did I realize that this was the first of many. He had never scrapped his knee before, and I remembered how incredibly lucky I am to be present for another first. I was never able to be a comfort for my daughter. I was never able to kiss her boo boos or hold her when she cried, I never stayed up for hours and hours trying to soothe her. Oh, but I spent so many nights staring at the ceiling wishing I could hear her cry. 
My point, is that I got to put my baby boy up on my counter. Clean up his little booboo. Slap a bandaid on it, and give him snuggles. I’m grateful for that, because it’s a privilege to be his momma I needed something this week to remind me of that. 
It’s not that I don’t always know it, but of course somedays are harder than others. 


Monday, May 6, 2019

I can finally say, I know what killed my daughter...

I’m finally able to say it. 
I think I know what killed my daughter. 
I don’t have anymore medical evidence today, than I had yesterday, or six months ago, or a year ago. Things have just started to click together more in my brain, and fell into place for me. 

If you follow my blog, you’ll have read a post not too long ago, about finding my old planner. That planner held my life in it. I had “mom brain” ( which is really just Kassie Brain) so I wrote down all the things I wanted to ask my care providers at my next meeting, and if I didn’t write it down, I would forget. 
So I still have those notes. 
They had comments like 
“Dark Pee. Water intake?”
So I asked my midwives how much water I should be drinking. 
“itchy Skin. Benadryl?”
So I asked my midwives if Benadryl was okay to take.
     ~ Reading that note brought up a memory of  Matthew attending one of my appointments, he told my midwife that I had been itchy. That immediately caught her attention, and when she asked

me about it, I brushed it off to a medical condition that I have, that causes hives when my skin temperature changes, I told her it was (my) normal. 


“Changing her position.” 
So I asked for stretches I could do to keep her out of my rib cage. 
     ~And that one sparked a memory, about how she seamed to Always have her foot under my ribcage Always on the right. 

Dark Urine, Extreme Itching, and Upper Right Quadrant pain are all the top symptoms of Intrahepatic Cholestasis of pregnancy (ICP). 

“ICP is a liver disorder that occurs in pregnant women. Cholestasis is a condition that impairs the release of a digestive fluid called bile from liver cells. As a result, bile builds up in the liver, impairing liver function.”




~It also dramatically increases your chances of Stillbirth. 
~It reoccurs in 60-90% of following pregnancies,
~And it occurs more often in women who’s sisters or mothers have also had it. 




My sister was diagnosed with ICP in her pregnancy less than six weeks after my daughter died.  I was diagnosed with it 2 years later while I was pregnant with our second child. 
And I had all the signs. I just never said them out loud to my providers. 


In up to 100% of Intrauterine deaths, related to ICP there is meconium present. (Also present in 15% of live births) There are also symptoms of oxygen deficiency recorded in the autopsy, a majority of the time. 
We chose not to have an autopsy preformed, but she had a heavy presence of meconium, and symptoms of anoxia including purple lips. 


I don’t have any new evidence, I just have my gut, and when I throw all this information together, for me; its enough. 

I can finally say what killed my daughter.
When someone asks me, what happened? Instead of saying, 
“I don’t know. We had a ultrasound 6 hours before and everything was fine.”

I will look at them and give them an answer. I will tell them that she died of a medical condition, that occurs occasionally in pregnant women. I will tell them what my symptoms were. I will tell them to speak up about their symptoms, and tell their providers. I will tell them so that maybe, they will be able to catch this before it gets ahead of them, or someone they love. 




Just like  I did a few weeks ago. I told a Momma about my story, about my daughter,  and she told her Doctor about her symptoms, and was able to take action during her pregnancy, she delivered a healthy baby,  and for me, that helped me cope with my daughters death a little more. 






Talk about your symptoms. Even the small ones. I promise you, you'll never regret telling your doctor/midwife too much. 


                  Leeona Christine, where ever you are, you are loved beyond measure. 










https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2678574/


Monday, March 18, 2019

Pancakes and Pajamas.

A birthday party for a little birthday boy. 
I read a post once about a mom to a rainbow baby going "over the top" for her rainbows birthday party. She felt like she had been robbed of birthdays with her first child, and so she made a point to make each birthday party special for her next baby. I'm not sure I can blame this on loosing my daughter.  I think her first birthday party probably would have been a little extra cute too. 

However the day of his actual birthday, I spent alot of time thinking of her, feeling extra grateful for him, and considering how lucky we are to have this sweet boy. We spent the whole day, just the two of us, ( with the occasional interruption for Bella, our Jack Russel) We snuggled, and played with his new birthday truck. We read books, and giggled, and it was a great day. I am so so thankful for this sweet little boy! 

NOW; LETS TALK PARTY. 
I've learned that I'm a Pinterest Momma. I got it from my mom, who is a party planner extraordinare. And thanks to all kinds of help from Indulge Cakes and Cupcakery in Ellsworth, we made his party ADORABLE <3 She flipped pancakes to order, and set up the cutest breakfast bar. We had a muffin tower, yogurt parfaits an adorable mimosa bar, and sprinkle dipped milk cups!💗💗💗💗 

 Watching his face when he realized he was allowed to smash into this adorable cake was priceless! 
ess!
We had a Cereal Bar!
Complete with Strawberry milk, whole, and Chocolate!
A home made pancake banner draped across the front of the table,
Mitchells Daddy glued 100 tiny pancake confettis together by hand!
And Mitchell happily helped himself to some Yummy Fruit Loops! 




   
My Birthday boy <3 
So grateful that we got a couple photos of him in front of this cute set up Indulge Cakes and Cupcakery



 The Muffin Pile was QUICKLY devoured!

Can you really have a brunch without a Mimosa Bar!?


Frozen Grapes to keep those Mimosas cold!

 Kisses from his "Cookie" (Grandma Cook) 
 Scrumptious Yogurt Parfaits!
Indulge Cakes and Cupcakery
Having fresh made pancakes during his party was THE CUTEST and they made the whole place smell amazing! My personal pancakes were made with sprinkles and topped with whipped cream! Although I was eyeballing those chocolate chip and banana ones! ;)
Indulge Cakes and Cupcakery
 All Kinds of good toppings!
Indulge Cakes and Cupcakery

 TELL ME THESE MILK CUPS AREN'T THE CUTEST THING YOU HAVE EVER SEEN?
Oh you can't?!
That's right, because you would be lying! 
I loved these.
They were probably my favorite part,
 Indulge Cakes and Cupcakery went
ABOVE AND BEYOND with these..



A nice Pop Tart Selection on the Mimosa bar! 
Harper was pretty impressed with the sprinkle cups by Indulge Cakes and Cupcakery  

1,734 days "She Can't Come Visit You... She Died"

  My Cousins daughters went to build a bear after Leeona Died and made this teddy bear. They gave it to me so that I could feel better, and ...